Meeting in Dallas, february 2008
| Input on day-to-day challenges asked |
| KS&A is convening a scientific meeting in Dallas, Texas in February. The meeting brings together 24 basic, clinical and translational researchers interested in sex chromosome trisomies. We are working to breathe life into the scientific advisory committee because it hasnt met since 2001 and the mission of KS&A has changed to include the girls and women with the triple x signature. In the past the researchers were primarily focused on xxy boys. We know that there is an inherent sex-difference between boys and men with an extra X or Y and the girls. We are attempting to gather questions and concerns from parents, families and adults with 47,XXX. The questions and concerns will be presented to the researchers so the self and family voice can be heard. We have hard data from 3 studies that highlight some parental concerns, but not as much as we would like. We would love to hear what you would like researchers to know about the day-to-day challenges. If you do, please send an email to Lennie Wilson |