Unique Study: Development of children with an extra sex chromosome
| The aim of this study is to find out whether children who have an extra X or Y chromosome experience any problems or difficulties during their childhood. |  |
| This study is only open to families from the UK. |
| We are informing parents about this study if they have a child between the ages of 4 and 16 years who is known to have an additional X or Y chromosome. We would like these parents to know about the study and offer them the opportunity to participate if they wish. In some cases, the parents were told about the extra chromosome during pregnancy, if the mother had an amniocentesis or other similar test. We aim for 150 families diagnosed in this way to take part in the study. For other children the extra chromosome was found by a blood test during childhood, perhaps if the boy or girl has had any problems with their learning at school and parents may have heard about the study through the parent support group called Unique. A further 100 families will be recruited through the patient support group,”UNIQUE”. www.rarechromo.org Read more by clicking on the link below. |
| 4-12-2009 Report out now of this study: |