American Email group TrisomyX
This group was designed for parents and other family members of adolescents, teens, and adults who have a female family member with trisomy X or a related condition, as well as the individual with a diagnosis of trisomy X. Parents of younger children with a trisomy x diagnosis or a prenatal diagnosis are also welcome to join but another group, raregeneticdisorders@yahoogroups.com has a large community of parents with younger children and expectant mothers. |