Internationa(a)l Triple-X Contact/Support Groups



EUROPA/EUROPE




NEDERLAND-BELGIË/THE NETHERLANDS-BELGIUM

Contactgroep Triple X Syndroom
Thea van de Velde en Ida Bakker
p/a Langsteek 15
5641 NG Eindhoven
The Netherlands
Email: info@triple-x-syndroom.nl
Website: www.triple-x-syndroom.nl


DUITSLAND/GERMANY

Triplo-X-Kontaktgruppe
Wegenerstr. 15
89231 Neu-Ulm
Tel: +49-(0)731-98490 16
Email: info@triplo-x.de
Website: www.triplo-x.de


FRANKRIJK/FRANCE

Valentin Association de Porteurs d'Anomalies Chromosomiques
52 La Butte Eglantine
95610 Eragny
France
Tel: 33 (0)1 30 37 90 97
Email: contact@valentin-apac.org
Website: www.valentin-apac.org


ENGELAND/UNITED KINGDOM

Triple-X Family Network Support Group
Helen Clements
32 Francemary Road
London SE4 1JS UK
Phone: 44 (0)208 690 9445
Email: helenclements@hotmail.com
Website: triplexsupportgroup.homestead.com


IERLAND/IRELAND

Inclusion Ireland
Ms. Finula Garrahy
Unit C2, The Steelworks, Foley Street,
Dublin 1 DUBLIN
Phone: +353 (0)1 8559891
Email: info@inclusoinireland.ie


OOSTENRIJK/AUSTRIA

Trisomie-X-Kontaktgruppe Österreich
Pfarrhofgutweg 8
5400 Hallein
Email: Ansprechpartner für Trisomie X Syndrom
Website: www.klinefelter.at/trisomie_x


ZWITSERLAND/SWITZERLAND

Association Enfance et Maladies Orphelines
Ms. Bhira Meyer
2 rue du Simplon
1870 Monthey (Valais) 1
Phone: 41 (0)24 473 20 10
Email: info@aemo.ch
Website: www.aemo.ch


DENEMARKEN/DENMARK

Triple-X Foreningen i Danmark
Ms. Anelli Frandsen
Email: mail@Triple-X.dk
Website: www.triple-x.dk


NOORWEGEN/NORWAY

Frambu-Senter for sjeldne funksjonshemninger
Kontaktperson for trippel X:
Eva Elisabeth Næss (fagkonsulent/fysioterapeut)
Telefon: 64 85 60 40
Email: een@frambu.no
Website: www.frambu.no


ZWEDEN/SWEDEN

The mother of a young Triple X girl, who's diagnosed
in 2008, created a blog on the internet.
She tried to translate information and debate her thoughts
on the subject.
Unfortunally the blog stopped in june 2009.
Website: trippelx.wordpress.com


GRIEKENLAND/GREECE

To Mellon-Association of people with genetic disorders
Dr. Helen Fryssira
Medical genetics, University of Athens, Aghia Sophia Children's hospital
Makrinitsas 16
115 22 Athens
Phone: 30 21 06420821
Email: info@tomellon.com.gr

Ms. Irene Simeonidou
Kalamos Galissa
84100 Syros, Cycladhes
Greece
Phone: +30 6977660860 & +30 2281062198
Email iren_simeonidou@yahoo.gr


ITALIË/ITALY

Associazione Sindromi Cromosomiche e Genetiche Clinica Pediatrica
Università di Ancona
Ms. Raffaella Formato Urbinati
Via F. Corridoni 11
60123 Ancona
Phone: 39 071 33633
Email: segr.clinicapediatrica@univpm.it


POLEN/POLAND

Stowarzyszenie na Rzecz Dzieci z Zaburzeniami Genetycznymi
Ms. Hanna Maciejewska
Os Lecha 4
60-293 Poznan
Phone: 0 607 222 72
Email: gen@gen.org.pl


ROEMENIË/ROMANIA

Organizatia trebuie- Bacau
Ms. Didina Obreja
Str. Nicu Enea, 42A-271
600191
Bacau
Phone: 00 40 234 544 565
Email: trebuie@yahoo.com




AMERIKA-AMERICA





VERENIGDE STATEN/UNITED STATES

Genetic.org KS&A
P.O. Box 461047
Aurora, CO 80046-1047
Phone (Toll-Free): (888) 999-9428
Outside U.S. / Canada: (303) 400-9040
Email: info@genetic.org
Website: www.genetic.org




AUSTRALIË-AUSTRALIA





AUSTRALIË/AUSTRALIA

The Association of Genetic Support of Australasia
66 Albion Street
NSW 2010 Surry Hills
Phone: +61 2 9211 1462
Email: info@agsa-geneticsupport.org.au

X&Y Chromosome Variations Support Australia
Ms. Monica Bray and Ms.Rebecca Waters
20 Lamb Street, Lilyfield
NSW 2040 Sydney
Phone: 61 2 9818 8981
Email: monicabray@ymail.com or bec_a_boots@hotmail.com

[WELKOM] [Diversen]