Discussing Diagnosis with your Child 11-2012
| X and Y Chromosome Variation Study This is an important study being conducted by a graduate student working in conjunction with the eXtraordinarY Kids Clinic at Children's Hospital Colorado in Denver. |
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| Appeal from researcher: Hello, I am a Genetic Counseling Graduate Student at the University of Colorado Denver. My Capstone Research Project aims to develop a brochure for parents who are considering discussing their child's diagnosis of an X or Y chromosome variation with him or her for the first time. As you may agree, I have found that information and resources regarding this topic are quite limited. It is important that the brochure contain accurate and helpful information for parents. Therefore, I have developed a survey to collect information about real experiences discussing the diagnosis and possibly include this information in the brochure. If you are a parent of a child with an X or Y chromosome variation, I am interested in learning about your experience discussing the diagnosis with your child for the first time. If you are personally diagnosed with an X or Y chromosome variation, I hope to gather information about your experience learning about your diagnosis. |
| To participate in the survey, please click on this link. The survey should take approximately 15-20 minutes of your time. Participation is completely voluntary and anonymous. |
| Anna Dennis Genetic Counseling Graduate Student University of Colorado Denver Anna.Dennis@ucdenver.edu 303-724-5784 |
| This study is being conducted under the supervision of Dr. Nicole Tartaglia. |