New York Tri-State Regional Support Group

Unfortunately, this meeting was cancelled due to lack of attendance (only 16 people registered to attend).

They are thinking maybe of rescheduling the meeting in 4-5 months.


New York Tri-State Regional Support Group
For X+/Y+ Chromosomal Disorders

For families and individuals of all ages affected by
XXY (Klinefelter Syndrome),
XXX, (Trisomy X)
and variations

10 am to 3:30 pm (registration 9:30 am)
Sunday, September 21, 2008
The Wang Center
Stony Brook University
Stony Brook, NY 11794

Rhoshel Lenroot, MD
National Institutes of Health

Dr. Lenroot will speak about the neuroimaging and neurocogitive studies underway at NIMH on individuals with XXY, XXX and XYY and variations.

Additional presentation topics to be announced, possibly Ask the Doctor and
What You Need to Know about Preparation for Adulthood

Support group discussions to follow lunch. We need volunteer leaders for groups including parents of young children, parents of adolescents, families of XXX girls, families of XYY boys, adult XXY men, etc. Please respond if you are willing to be a support group leader for the day.

A contribution of $20 per person is suggested to pay for the costs of coffee, tea, soda, a box lunch, and incidentals, etc.

There are no facilities for children at the Wang Center, and it is full of hard granite surfaces as well as pools and fountains. If you bring children under twelve years, please bring activities and a person who can supervise them.

For a registration form, and for additional information including directions to Stony Brook University, please visit The support group announcement is prominently featured on the homepage and includes a link to click to obtain registration form and directions. Pre-registration is required, preferably by September 15th, because the event includes lunch.

Posted by Jim Moore on behalf of:

Virginia Isaacs Cover MSW MBA
Finance and Development Officer
The Cody Center
Room 177 Putnam Hall
Stony Brook NY 11794-8788
(631) 632-8868 (phone)
(631) 632-3120 (fax)

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