Internationa(a)l Triple-X Contact/Support Groups
EUROPA/EUROPE |
| NEDERLAND-BELGIË/THE NETHERLANDS-BELGIUM |
| Contactgroep Triple X Syndroom Thea van de Velde en Ida Bakker p/a Langsteek 15 5641 NG Eindhoven The Netherlands Email: info@triple-x-syndroom.nl Website: www.triple-x-syndroom.nl |
DUITSLAND/GERMANY Triplo-X-Kontaktgruppe Wegenerstr. 15 89231 Neu-Ulm Tel: +49-(0)731-98490 16 Email: info@triplo-x.de Website: www.triplo-x.de |
FRANKRIJK/FRANCE Valentin Association de Porteurs d'Anomalies Chromosomiques 52 La Butte Eglantine 95610 Eragny France Tel: 33 (0)1 30 37 90 97 Email: contact@valentin-apac.org Website: www.valentin-apac.org |
ENGELAND/UNITED KINGDOM Triple-X Family Network Support Group Helen Clements 32 Francemary Road London SE4 1JS UK Phone: 44 (0)208 690 9445 Email: helenclements@hotmail.com Website: triplexsupportgroup.homestead.com |
| Triple X Syndrome Support UK Birmingham, West Midlands, England, United Kingdom Founder: Rosie van Moppes Website: triplexsyndromesupport.co.uk Email: trixsyndrome@gmail.com |
IERLAND/IRELAND Inclusion Ireland Ms. Finula Garrahy Unit C2, The Steelworks, Foley Street, Dublin 1 DUBLIN Phone: +353 (0)1 8559891 Email: info@inclusoinireland.ie |
OOSTENRIJK/AUSTRIA Trisomie-X-Kontaktgruppe Österreich Pfarrhofgutweg 8 5400 Hallein Email: Ansprechpartner für Trisomie X Syndrom Website: www.klinefelter.at/trisomie_x |
ZWITSERLAND/SWITZERLAND Association Enfance et Maladies Orphelines Ms. Bhira Meyer 2 rue du Simplon 1870 Monthey (Valais) 1 Phone: 41 (0)24 473 20 10 Email: info@aemo.ch Website: www.aemo.ch |
DENEMARKEN/DENMARK Triple-X Foreningen i Danmark Ms. Anelli Frandsen Email: mail@Triple-X.dk Website: www.triple-x.dk |
NOORWEGEN/NORWAY Frambu-Senter for sjeldne funksjonshemninger Kontaktperson for trippel X: Eva Elisabeth Næss (fagkonsulent/fysioterapeut) Telefon: 64 85 60 40 Email: een@frambu.no Website: www.frambu.no |
ZWEDEN/SWEDEN The mother of a young Triple X girl, who's diagnosed in 2008, created a blog on the internet. She tried to translate information and debate her thoughts on the subject. Unfortunally the blog stopped in june 2009. Website: trippelx.wordpress.com |
GRIEKENLAND/GREECE To Mellon-Association of people with genetic disorders Dr. Helen Fryssira Medical genetics, University of Athens, Aghia Sophia Children's hospital Makrinitsas 16 115 22 Athens Phone: 30 21 06420821 Email: info@tomellon.com.gr |
| Ms. Irene Simeonidou Kalamos Galissa 84100 Syros, Cycladhes Greece Phone: +30 6977660860 & +30 2281062198 Email iren_simeonidou@yahoo.gr |
ITALIË/ITALY Associazione Sindromi Cromosomiche e Genetiche Clinica Pediatrica Università di Ancona Ms. Raffaella Formato Urbinati Via F. Corridoni 11 60123 Ancona Phone: 39 071 33633 Email: segr.clinicapediatrica@univpm.it |
POLEN/POLAND Stowarzyszenie na Rzecz Dzieci z Zaburzeniami Genetycznymi Ms. Hanna Maciejewska Os Lecha 4 60-293 Poznan Phone: 0 607 222 72 Email: gen@gen.org.pl |
ROEMENIË/ROMANIA Organizatia trebuie- Bacau Ms. Didina Obreja Str. Nicu Enea, 42A-271 600191 Bacau Phone: 00 40 234 544 565 Email: trebuie@yahoo.com |
AMERIKA-AMERICA |
VERENIGDE STATEN/UNITED STATES Genetic.org KS&A P.O. Box 461047 Aurora, CO 80046-1047 Phone (Toll-Free): (888) 999-9428 Outside U.S. / Canada: (303) 400-9040 Email: info@genetic.org Website: www.genetic.org |
AUSTRALIË-AUSTRALIA |
AUSTRALIË/AUSTRALIA The Association of Genetic Support of Australasia 66 Albion Street NSW 2010 Surry Hills Phone: +61 2 9211 1462 Email: info@agsa-geneticsupport.org.au |
| X&Y Chromosome Variations Support Australia Ms. Monica Bray and Ms.Rebecca Waters 20 Lamb Street, Lilyfield NSW 2040 Sydney Phone: 61 2 9818 8981 Email: monicabray@ymail.com or bec_a_boots@hotmail.com |